Multiple Sclerosis

MS in children and adults

What is Multiple Sclerosis (MS)? MS is a disease of the central nervous system - that is, the brain and spinal cord. Myelin is the insulation or covering on the nerves that serves to improve the conduction of nerve impulses and also maintains the health of the nerves. However, with MS, an inflammation causes the myelin to disappear over time. This will eventually cause impairment to patients’ vision, speech, memory and motor functions, particularly walking and writing abilities. Approximately 350,000 people in the U.S. have multiple sclerosis.

Multiple sclerosis symptoms

There are many symptoms of MS that may indicate the onset of the disease. This can include:

  • Muscle numbness, weakness, fatigue and pain
  • Vision problems (such as blurred vision, blindness in one eye or red-green color distortion)
  • Speech impediment, dizziness
  • Memory loss
  • Impaired judgment and decreased concentration

The intensity of the symptoms can range from mild to severe with long or short durations. Typically, MS is diagnosed in people between the ages of 20 and 50 years; however, it has also been diagnosed in the elderly and in children. A diagnosis can be made through a combination of neurological and physical examinations.

Multiple sclerosis treatment

Multiple Sclerosis can be treated, but currently, there is no cure. Some of the goals of MS treatment include reducing the number of symptom attacks, helping the recovery from attacks, slowing the progression of the disease and relieving the problems caused by loss of functions.

The most common form of treatment is disease-modifying drugs. Some examples include interferons (Avonex), glatiramer acetate (Copaxone) and natalizumab (Tysabri). Many patients will be placed on medication as soon as they are diagnosed in order to prevent the disease from progressing too rapidly.

Multiple Sclerosis in Children

MS is very rare in children. Only 0.2 – 2 percent of people diagnosed with MS experience their first symptoms as young as 10 years of age. Initial symptoms can include subtle signs such as problems with bladder control, movement difficulties or a disturbance of balance. As with MS in adults, the symptoms and course of the disease in children vary greatly, making it hard to diagnose as well as making it difficult to predict how the child will be affected by the disease in the future. It is common, however, for the symptoms to go through periods of relapse and remission.

Impact on life

As one can imagine, MS can greatly impact a person’s life, leaving them unable to do the things that they once enjoyed. Joining support groups or attending counseling can help patients and their families deal with the affects that multiple sclerosis is having on their lives.

For children with MS, cognitive difficulties can prevent them from performing well in school, both academically and emotionally. However, the same drugs used to treat MS in adults can help to alleviate the symptoms found in children. A tutor may provide the extra assistance and personal attention your child needs.

When diagnosed early and treated appropriately, MS can be slowed in its progression, allowing affected children to have active, happy childhoods.

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Our 15 year old daughter was diagnosed with relapsing remitting MS in fall of 2009. She woke up one day with numbness and tingling from her neck down. Her diagnosis process started with our family doctor who then referred us to a pediatric neurologist. After that she was sent to a MS specialist who confirmed her diagnosis and started her on weekly Avonex injections. Most of the side effects from the drug have lessened over time. We are just trying to give her the positive support she needs to help her deal with MS as best she can. I do wish there were programs to help teens living with MS in the San Antonio area. I think it would be so beneficial for her to talk to other teens with MS and be able to have a yoga/fitness class that is designed specifically for teens who have this disease. She and other teens like her really need to relate to others their age that are going through MS together. Most of the support groups/classes I have found are for adults or they are for teens not in our area. To the parent of the 9 year old with MS symptoms…please get a second opinion. My daughter’s doctor has seen patients as young as 5 with MS. To the mom of the 16 year old daughter with MS. Please seek help from someone in your community if you are feeling overwhelmed. The women at my church have been a wonderful support group for me, both when my daughter was first diagnosed and now as we deal with her symptoms on a daily basis. If you need help, just ask someone. It really helps me to have the support of my friends through the rough spots…and I am sure you can get some help from your friends with things around your house. You need take care of yourself, so you can help your daughter. I would talk to the doctor who is treating your daughter and see what else they can suggest to help her…surely they can give you different treatment options. My daughter’s symptoms have not been that debilitating, but I do have a friend at church whose step-daughter went through a similar experience with MS when she was 15…now she is a functioning adult in her 20’s with a young son. Hope this helps!
Posted on 3/8/2010 11:39:00 AM by Anonymous
My son is 9 years old. He has had symptoms of MS for awhile and his doctor does not know if it is MS because the Doctor said that small children do not get MS. I am at my wits end with this. He falls alot, he has bowl problems, it is hard for him to detect when he has to urinate. This sometimes leads to embarrising accidents for him. He is in alot of pain. Alot of headaches, numbness, tingling feeling. The teachers at his school says that they do see MS in him. How do I convince my sons doctor to look more into this?? Help. Should I switch to a different doctor or just let the doctor tell me that a child cannot have MS and that I am an over protective parent?
Posted on 2/23/2010 6:27:00 AM by Anonymous
My 16 y.o. daughter has tingling in hands and feet, numbness in left hand and foot, extreme exhaustion, very wobbly and falls frequently. She is unable to go to school which is very unfortunate. She had been seeing a neurologist for her migraines but after a normal lumbar puncture he says he thinks she is just trying to stay our of school. He had been fired. But that doesn't help my daughter. I don't know what to do. I'm exhausted taking care of all of our animals, we live on a farm and dad is deployed, and her; forget the house. How can I get her better?
Posted on 9/8/2009 5:34:00 PM by Anonymous
My daughter at 32 was diagnosed with relapsing-remitting MS. One morning she woke up numb from the waistdown.She was on Interferon-Rebif for3 months then switched to Copaxone as the flu-like symtoms and heardaches weren't exceptable. She lives in Europe and was referred by a friend to seek out nutrition help. Now for 8 months she eats white or rye bread, butter or oilve oil,2Tb. spoons daily, no Omega 6,Linolaic Acid, margarine, minimal sugar or sweets. No peanut butter or nuts. She works 8-9 hrs plus commuting 1 1/2 hrs. Rest , sleep, stretching, yoga, biking and swimming is her exercise in addition to skiing one day a week and maybe it's a 1/2 day. Omega 3 , Vit. D,C Multivit. are some of what she takes. A must read is MS recovery Diet, Good luck as my daughter feels fine but knows it when she gets off her diet and tingling in her hands & feet appear. Diet is key. A Diabetic diet is best. Sincerely BES
Posted on 6/1/2009 4:46:00 PM by Anonymous