Cystic Fibrosis
Information on cystic fibrosis
What is cystic fibrosis?
Cystic fibrosis is a genetically inherited disease that causes thick mucus to be produced in the lungs and digestive system. It can lead to serious respiratory failure, digestive complications, slow growth rates and infertility. According to the Cystic Fibrosis Foundation, 30,000 people in the United States and 70,000 people in the world have cystic fibrosis.
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What are the causes of cystic fibrosis?
The causes of cystic fibrosis are purely genetic. A mutation of a single gene affects a protein called the “Cystic Fibrosis Transmembrane Conductance Regulator,” or CFTR, and this mutation is responsible for all the symptoms of cystic fibrosis. The CFTR monitors passage of chloride ions within the body. Chloride ions help the movement of water through cells, and when they are disrupted by the mutation of the CFTR, normally produced mucus becomes thick and slimy rather than thin and freely moving. It then clogs passages in the body.
What are the symptoms of cystic fibrosis?
Cystic fibrosis symptoms include respiratory problems such as shortness of breath, coughing with phlegm and chronic lung infections. Difficulty in gaining weight and salty-tasting skin can also be symptoms of cystic fibrosis. Bowel movements are often difficult for people with cystic fibrosis.
Is there cystic fibrosis testing?
When symptoms of cystic fibrosis are identified, several methods of testing are available to determine if the CFTR mutation is present. One method of cystic fibrosis testing is the sweat test, in which the individual's sweat is chemically analyzed for higher sodium and chloride content.
The cystic fibrosis genetic test can be used to determine if an individual is a carrier of the CFTR mutation. Parents might use the cystic fibrosis genetic test to determine the probabilities of passing mutations or the disease onto their children.
Cystic fibrosis is diagnosed very early, typically before age two. Furthermore, the Cystic Fibrosis Foundation recommends that all newborns be screened for cystic fibrosis so that they may benefit from early diagnosis.
Is there cystic fibrosis treatment?
Treatments for cystic fibrosis include therapy techniques designed to loosen the thick mucus in the airways. These include body positions and a vibrating vest that helps agitate the mucus.
Several inhalation medications and antibiotics can also be used as cystic fibrosis treatment. Proper diet and nutrition, administered by professionals, can also diminish the harmful symptoms of cystic fibrosis.
What’s new in cystic fibrosis research?
The Cystic Fibrosis Foundation is highly involved with research toward treating and curing cystic fibrosis. Over twenty medications and other treatments are currently in development by the Cystic Fibrosis Foundation. Ten research centers are largely supported by the Foundation, and continuous progress and advancement is being made toward finding better treatments.
When the Cystic Fibrosis Foundation began its work, patients were not expected to survive past childhood, but the current median survival age is 37 years.
To find out more about the Cystic Fibrosis Foundation and how you can help the cause, visit http://www.cff.org.
By Shane Hampton
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Wow this site is really making me feel that i'm not alone, my son is 7 he was diagnosed with CF at 4 he has been taking enzymes chest pt ever since. He went through the swine flu but after this he has been looking very sick, tired, sleepy, he coughs a lot, at night he seems to be losing his breath i'm starting to get worried, i'm a single mother of three i also have twins 2 yrs old they don't have CF thankgoodness!! well they are from different dads. recently i started to have problems with my apt. it had mold in the bathroom ceiling i was scared for my son with CF the landlord refuse to fix then the city interfered for nothing really just to cause me problems with the owners they refuse to sign the lease again but i need to find a place n is really difficult due to my income and now i must take care of my son twice as before is a lot but it just makes me stronger, I know is too much info but not a lot of ppl understand what is to have a child with CF, God bless every1 n thankgoodness for sites like this!!
Posted on 11/13/2009 7:05:00 AM by Anonymous
My Grandson may have CF and it is so frightening to me to read what I have. It will be a long hard fight and each day will be a blessing.Thank you all for your comments and stories. It helps to know you are out there. God Bless.
Posted on 10/10/2009 7:21:00 PM by Anonymous
I knew someone who died in 2008 of cf and he was only 18 also. My son got to meet him when we were in the hospital last year right before he passed away. And it really opened my son's eyes to what he really has. And that it isn't a joke or something he will out grow that it is serious and he needs to take those meds and those breathing treatments to stay as healthy as possible....
Posted on 9/23/2009 8:33:00 AM by Anonymous
I had a friend he just passes away this 2009 from Cystic Fibrosis he was only 18 years old.
I miss him very much but one day I will get to see him again.
Posted on 9/22/2009 10:13:00 PM by Anonymous
My son just got out of the hospital thursday after a 14 day stay. He had pneumonia and some stomach issues. Every sense he had his mickey g-tube put in his reflux has gotten alot worse and he has been throwing up most of his feedings. they did a scope procedure on this stomach and he seems alot better except for swallowing and we hope over time it will get better. He did his PFT's and only blew 48% and it really scared us, that was the true reason for the hospital stay. Now we are on new enzymes and alot of new breathing treatments hopefully he will stay well longer. Say a prayer that this is what my son needs to make his life alot easier...
Posted on 9/22/2009 4:13:00 PM by Anonymous
My daughter is 28 yrs.old, and is almost 4 months pregnant with twins and has just been diagnosis with CF. what does this mean???I'm scared for her and the babies...TB
Posted on 9/16/2009 11:06:00 PM by Anonymous
My son is fifteen mnths old . He has had pneuminia one time last year and he had bronchitis a few times . All summer long he has not had to use his nebulizer and I thought all our real trouble was behind us . Now he has thes gel things in his bowel movements and the Dr thinks it could be fat deposits .He has also only grown 12 ounces in 3 mnths ,but he has gotten taller :) so with all this info he decided a cf test on Monday and a trip to the Gastroenterologist is warented . His test@ birth was normal and we have no family history of cf . I feel he dosent have this but you never know and I have been crying off and on since yesterday . If anyone has any advice or knows any thing about his stool issues I would love to here. Please pray 4 Jackson and our family and I will keep u all in my prayers . I admire you all 4 your strength and courage !
Posted on 9/15/2009 1:19:00 PM by Anonymous
My son that has CF got through the Swine Flu (or H1N1) with flying colors. He said the worst thing about the flu was the sore thraot and the headaches that followed a fever of 104f. I hope and pray no one has to go through that, but if they do I hope its as easy as it was for my son. I was really worried that he would have complications due to his CF and his immune sysyem being down.
Posted on 9/1/2009 11:34:00 AM by Anonymous
To have a child diagnosed with a life threatening condition is very difficult. To me, the day they diagnosed her, was the worse day of my life. Although I was glad to finally have a diagnosis, it wasn't the answer I wanted. We didn't know we would get immediate test results so I was alone when I got the answer. I cried so very, very hard. I feel terrible that she has to fight CF everyday. The dr.s told me, that it is a lot of work to care for a child with CF=time consuming with their minimum of 2 therapies a day and then the nebs and the enzymes and oral meds. They also told me it is so important that the parent keep up the child's care regimine. It is NOT easy. I can understand the parent of the 8 year old and the struggles they go through to get therapy done. We too have had to pin our daughter down ( she is 4 now) to get her to do therapy. It is very emotionally draining for her and us. But the therapy is so important. I applaud you for not giving in. It is so hard, but it would be harder to lose them. My little gal will tell me that "I'm not doing therapy any more. I'm done." But we NEVER give in. She always does it. Our daughter is doing VERY well and is a little fighter. She is a blessing in our life and we are grateful for everyday we are together. We do more together as a family, spend time playing, enjoying each other. I obviously would give anything for our daughter to not have CF and not struggle with this condition her whole life, but we do choose to find what opportunities it has brought to us - the daily awareness to embrace life, love each other well, appreciate every day and never give up hope for a cure.
I pray for all living with CF. I admire their courage to fight for life everyday. They are amazing in their strength and resolve to beat CF.
Blessings to all.
Posted on 7/28/2009 4:39:00 PM by Anonymous
I am the mother of a 30yr. old young woman that was diagnosed with CF at 3 mos. She never had problems until she reached 13 and started having symptoms of asthma. Through the teen years she was in control of meds and decided she just wanted to be like everyone else and didn't take care of herself or let me take care of her. I guess it was the rebellious period!!!! :>) When she was 20 she started having to go into the hospital periodically. For the last 2 years she was having to go into the hospital every 2 or 3 mos. She was on oxygen 24/7. She couldn't pick up her newborn niece to play with her much less play with her 3 yr. old nephew. She had to rest before getting dressed after getting out of the tub. She could not gain weight (5'2" and 95lbs) even with a feeding tube. But, on March 27th my daughter received a double lung transplant and today she is living life!! She is able to play with her neice and nephew and I mean run around the yard without oxygen!!! She eats and is now weighing 116lbs. She is a miracle! Please do what the doctors say and help your children understand their roll in taking meds and doing therapies. I am praying everyday for a CURE for CF and I hope God blesses each and every one of you!!!!
Posted on 7/17/2009 9:10:00 AM by Anonymous
We went to the doctor yesterday and got some bad news. My son is 8 and he was diagnosed with cf when he was 3 months old. Ysterday we went to Doctors office with a really bad cough, when they did a x ray we found out that his left lung has some pneumonia in it along with the right lung, he has never had a problem with his left lung, its kinda been our saving grace. They removed half his right lung over 2 years ago. it just breaks my heart that he doesn't catch a break from all of this. And we had a BIG problem with him cutting off his machines during treatments and not completing his vest pt to the point me sit right on top of him during his treatments now. Every day is another day I have with him, and its so hard to explain to him that you have to do these treatmnent in order make it another day out of the hospital,. Please say a prayer for these beautiful babies and let the lord give them the strenght to understand.
Posted on 5/19/2009 3:09:00 PM by Anonymous
Thank you sososososo much for this information i really needed it because im writing a paper in cystic fibrosis and i really needed the info. Thank You thuis really did help and this website has a really cool name!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Posted on 5/7/2009 10:31:00 AM by Anonymous
My sweet (and first) grandchild, Jace, was born 12-16-09 and diagnosed within weeks since his test at birth was abnormal. We are taking enzymes before every bottle, giving PT 3 or 4 times a day (or more) and putting salt in his bottles. He recently starting using a nebulizer with albuterol and he breathes it right in. He is so happy and looks so healthy. We are so hopeful for his future. My daughter is having lots of issues with worry. She is a single mom; but has lots of us around to help. From reading all of your comments, it seems this disease is from one extreme to another. But, I think we all need to take it very seriously, and give the meds and treatments like our doctors say. May God bless. Donna, proud grandma from Tennessee.
Posted on 5/6/2009 3:56:00 PM by Anonymous
I had written in April regarding my four year old son. We have been waiting for test results and the doctor called us today. He does have the genetic mutation for CF and we will be following up with the lung doctor in a couple of weeks. We are unsure of what degree he has CF however, we are trying to prepare for the worst but expect the best. Any information you could provide as parents of a newly diagnosed child would be appreciated. And most certainly wee need your prayers. God bless you all.
Posted on 5/4/2009 5:54:00 PM by Anonymous
i am an RN with a two year old daughter who was diagnosed with cf during her first weeks of life. it was difficult for my husband and i to hear the diagnosis. no one that we are aware of in our family has ever had cf. it was difficult at first to adjust to the fact that our daughter has cf, but the love and support of our family and friends has helped. our daughter was in the hospital a year ago for her first "clean out". she was in for two weeks, longest two weeks of my life. shortly after this they put her on a med called periactin,to increase her appetite and to help her gain weight (she had not gained any weight for about two months, but had not lost any either) the med has helped! and she has been doing very well since then, she has had a few colds since then , which usually takes her a good two weeks to recover. she leads a normal, happy life.she loves to run and play outside and ride her bike. she will be starting preschool in the fall! good luck and god bless everyone, keep praying for a cure
Posted on 5/1/2009 5:23:00 AM by Anonymous
As regards to celiac, my pediatrician did bring that up and the test has been performed we should find out tomorrow!! good luck
Posted on 4/23/2009 12:50:00 AM by Anonymous
my borther sons have cff and i would like to know how long do they life
Posted on 4/20/2009 9:50:00 AM by Anonymous
I have a 3 month old baby that is on an apnea monitor and he stops breathen cause of all the mucas we are haven a cf test done and a sleep study done to find out what is wrong If u will please pray for him and I will pray for everyone out there. I'm so scared I'm a young mom but I know we can all make it no matter what god is with us all.
Posted on 4/10/2009 6:34:00 PM by Anonymous
My four year old son has had pneumonia 5 times in the last two years as well as a partial lung collapse. They have diagnosed him with everything from asthma to acid reflux. In addition he has suffered from constipation since birth and has to receive miralax everyday in order to have a bowel movement. Last year they did a CF test and it was inconclusive. He was hospitalized last week for double pneumonia and they repeated the CF test. We have yet to receive a result. I feel at a loss as to what to do, how to feel and what to expect. Any advice would be appreciated and of course your prayers would mean the world. Thank you
Posted on 4/10/2009 2:54:00 PM by Anonymous
Hello,
I'm writing in response to the parents that posted on April 2nd. I have a 4 year old daughter with CF. She was finally diagnosed at 8 mos of age. If your child was born in a state that does not have CF in the newborn screen ( at the time of birth) you can not know if they have CF unless sweat tested. You can test for that at any age, though I would do it asap if you suspect CF. The earlier the diagnosis the better. When my daughter was diagnosed. She only had 30% lung function at the time of diagnosis. She is now at 112% lung function. woooo whooo! It is a hard diagnosis, but your child can do well. Do what the dr.s tell you, do the meds and therapies and plan on them living a long life. Blessings to you!
Posted on 4/6/2009 11:28:00 AM by Anonymous
Wow my husband and i just took our 19 month old to a gastroenterologist who is pretty sure she has either celiad disease or CF. Anybody else ever told that celiac was a possibility before the diagnosis?
Posted on 4/2/2009 5:33:00 PM by Anonymous
I was told today that my daughter has to have a sweat test done. she has always had troubles with her bowels since birth, colds coughs etc. She is now 4 years old. Is this possible for her to have the disease at this age without finding it at birth? pretty scarry thinking about it. God Bless all you parents of CF children :)
Posted on 4/2/2009 3:55:00 PM by Anonymous
I am impressed by the information from this site. I am a RN and a mother of 1 child with CF, he is 6yrs old. He was diagnosed at 9months. This year he had his first exacerbation of CF, with lung functions dipping to 64%. He is now again @99% lung funtion after iv antibiotics and increased vest percussion and multiple and increased frequency of breathing treatments. All moms and dad: Keep up the meds and treatments......it's worth it......I plan on my child outliving me. Good luck to everyone....my prayers are with you all.......
Posted on 4/1/2009 11:38:00 AM by Anonymous
Hi, my 17 yr old daughter has C F. She was diagnosed at birth. She does chest therapy with the Vest twice a day. She has a bronchoscopy and major I V antibiotics twice a year. She takes 20 + meds per day as well as 5 different breathing RX. She leads a normal life aside from the medical RX. She is graduating in May 09 and has been accepted to 6 universities. She is planning her future career. Don't give up hope for your child. Treat each day as a blessing and enjoy your life.
Posted on 3/30/2009 1:52:00 PM by Anonymous
I am happy to see a site outside of the CF Foundation that is reporting CF accurately. There are too many sites that are purely morbid.
Thank you!
CF mom.
Posted on 3/24/2009 11:49:00 PM by Anonymous
today i got a call from the pediatrician telling me my newborn daughters test came back as abnormal for the cystic fibrosis of the lung i went to the local health office and had a repeat done i pray to god that my baby doesnt have to grow up with this i feel like crying now and i hope god watchs over her and i hope to have someone praying for my little baby girl....
Posted on 3/21/2009 2:46:00 AM by Anonymous
My daughter is 8 years old, at birth she was diagnosed as a carrier to CF.She has been sick the last 2 years with thick mucus and stuffiness. We recently repeated a sweattest with a high-normal so we are now witing on bloodwork sent out to genetic. We were told it would take 2 wks and found out it really is going to be 6 wks because it is being syquenced I have a cousin with the disease who is my fathers twins daughter. Today found out my dads cousin also had disease. SO I am sooo worried she is going to have it. CFTR ... I believe if she does get diagnosed it will be mild Thzank god!!! But I hope and pray it remains carrier only. Because I HAVE A SON who is 3 who has worst breathing issues and I dread to hear he has it too....,,. God bless all of you and your children.. BAK
Posted on 3/10/2009 7:12:00 PM by Anonymous
We are currently in the hospital today for 3 weeks an my baby is only 4weeks old. She was airlifted to a really great hospital where she was treated for rsv ,pnemonia, and another infection in her lungs. Now all that has cleared an she is still having troubles with breathing.So today our doctor has decided it is time to widin the range an they are going to test her for CF. I got on here as soon as they mentioned it to us an they said we would be here a while waiting on the test to come back.So far as I have been reading she has alot of the symptoms.So I am so glad all of you have your comments on here so i can see different situations an I pray that she doesnt have it an I am also praying for all of you...God Bless an Thank goodness you all posted these comments.
Posted on 3/5/2009 2:13:00 PM by Anonymous
My son was diagnosed with CF at 3 months old, now he is 7 years old. He has his good days and bad days. Just last year we were in the hospital 8 times. Peyton says its 8 times too many. He has had a upper lobectomy, a bronch, 2 feeding tube placements, and now we are talking about putting in a chemport, he is such a hard stick. We have been able to come home on IV antibiotics, which Peyton thought was really cool. God bless any child that has to go through this. They have got to be the strongest children. There are times when that son of mine is stronger than I could ever think of being. But it is nice to know that we are not alone.
Posted on 3/4/2009 1:53:00 PM by Anonymous
There are so many diagnosed anymore because of testing. My grandson is 14 and was diagnosed at 2 weeks. He was part of a twin to twin pregnacy that was delivered at 25 weeks. His brother died at a week of a blockage and then Cody had one. When they operated they discovered CF. He is in hospital now for clean out. He also has pluerisy. ( He likes hospital food :) He has had 15 sinus and ear surgeries and in spite of all meds etc... leads a pretty normal life. If only there was a cure.
Posted on 3/4/2009 11:32:00 AM by Anonymous
My daughter is 15 years old, she's had several sinus surgeries to remove cysts, and has a long history of coughing due to high volumes of mucous. The pediatric doctor has decided in the last few months that she needed CF testing and the sweat test was a "normal high" so we are now waiting on the blood work, which we were told would take 2 wks, but now we find out it's going to take a month!!! I am so worried, how could it take them 15 years to decide this? Has anyone else been diagnosed at a LATER age? As far as I know no one in our familes have CF, but one doctor told me that some people don't have even show side effects. I just want to scream!!!
Posted on 2/13/2009 7:51:00 AM by Anonymous
FOR ALL OF YOU WHO NEED HELP UNDERSTANDING CYSTIC FIBROSIS LOOK IT UP ON YOUR COMPUTERS. IT SCARES ME YOUR DOCTORS HAVE NOT GIVEN YOU ANY BOOKS ABOUT THIS FATAL DISEASE. YOU CAN CALL THIS NUMBER FOR A BOOK ON CYSTIC FIBROSIS. OR GET ON BOOMES SITE.HELP THEM FIGHT 1-800-FIGHT CF.OR E-MAIL@ info@cff.org ALOS THERE'S www.cff.org. GOOD LUCK & GOD BLESS. A.H.
Posted on 2/10/2009 7:33:00 PM by Anonymous
Responding to the babyboy'sGrandmother( who was born Dec 23) . I know how you feel. My Granddaughter was born 2 years ago Feb. 5th.She was dignosed @ 3 weeks old. Her mother took her out in freezing weather to. This is not good for ANY new born but with C.F. exspecialy because they have a higher chance to get pneumonia. Have you contacted the Cystic Fibrosis Foundation for a book that tells you everything about C.F. or the Boomer Eison (sp) foundation on C.F. ? This book will give you a better understanding about Cystic Fibrosis. Good Luck & God bless your Grandson XO . A.C.H.
Posted on 2/10/2009 7:19:00 PM by Anonymous
My grandson was born & dignosed in Dec. As a grandparent ,I angrily watch his mother parading him arouind malls, hours away, in weather alert temperatures. She refuses to acknowledge there is anything to worry about. His last test showed a second mutant gene now present. Will someone please tell me if she or I am wrong! As I understand, he isn't even on a feeding schedule as of yet. He was born Dec. 23. ~ Desperate for a response!
Posted on 2/2/2009 4:53:00 PM by Anonymous
My grandson was diagnosed with CF about 4 months ago. He is 10 months old right now. He is currently in the hospital while they try to get his lung infection under controll. His doctor said he has a mild form of it and that they are very close to a cure. He cannot keep food down and is losing weight. I am very concerned. has anyone ever hurd of a mild case before? I think their just saying that to ease thier minds.
Posted on 2/1/2009 8:55:00 PM by Anonymous
My Son is 21 months and is going to be tested to rule out CF, I honest didn't know anything about CF until now that I am researching it. There is no history of CF in my family and we are pretty sure none in my Husbands family, what I am reading is that it is inherited.
Is that true? Should I stop worrying?
Sara
Posted on 1/26/2009 3:13:00 PM by Anonymous
My daughter is 5 and was diagnosed with CF at 2 and a half. She went thru more than she should have. Her first surgery was clearing out her sinuses, her second was having her feeding tube put in and her last one was having her right upper lobe of her lung removed which was because of a late diagnoses. She was diagnosed on March 10, 2006 and her last surgery occured on Sept. 1 of 2006. She has been thru more than any little girl should have to, but it was all worth it now that I look back. I am happy to say she is doing wonderful and has not been admitted into the hospital since her lung surgery. Sam, Ohio
Posted on 12/22/2008 8:12:00 PM by Anonymous
MY CHILD WAS DIAGNOSED WITH CF AT 4 DAYS OLD, HE HAD A BLOCKAGE IN HIS INTESTINES CALLED MECONIUM ILLEUS. WE WERE RUSHED TO THE CHILDRENS HOSPITAL AND EMERGENCY SURGERY WAS PERFORMED. HE IS 2 YEARS OLD AND HAS THE DIGESTIVE AND THE LUNG PART OF CF. ITS VERY HARD BUT WE MAKE THE BEST OF IT. I AM EXPECTING OUR 2ND CHILD TO BE BORN IN JANUARY. I AM SO THANKFUL FOR ALL THE RESEARCH THAT IS BEING DONE ON NEW TREATMENT AND HOPEFULLY IN THE NEAR FUTURE A CURE CAN BE FOUND. GOD BLESS YOU ALL THAT ARE GOING THRU THIS TOO. PHYLLIS SIMMONS, CLARKESVILLE,GA.
Posted on 11/28/2008 6:52:00 PM by Anonymous
my 15 year old daughter has just been diagnosed with cf she only has symptoms in her digestive system any one else out there have similar?
Posted on 11/24/2008 10:22:00 AM by Anonymous
If your child is just a carrier, whom ever she marries will need to be screened before they reproduce. If he is a carrier also that will put them at risk of having a baby with CF.
Posted on 11/13/2008 2:10:00 PM by Anonymous
my child is a cystic fibrosis carrier and i want to know if it will effect her or if she will be fine thanks maggie andjelicfrom rowley. iowa
Posted on 11/11/2008 11:40:00 PM by Anonymous
I am waiting now to see if my three year old son may have CF, im so scared, i keep reading about the life expectantcy and 35-40 isn't enough! Im praying that its not CF, but the doctor seems to lean towards it......
Posted on 11/7/2008 7:21:00 PM by Anonymous
I am the survivor of someone who has passed away with this disease. After reading what i have above and seeing the comments below all i can offer is they can continue to lead almost perfectly healthy lives if you stay on top of treatments and be proactive about a healthy lifestyle. My partner lived to be 36 and although he was unhealthy towards the end it never stopped us from enjoying life like a normal couple. Keep the faith they will find a cure.
Posted on 10/29/2008 12:56:00 PM by Anonymous
my 6 year old son may have cystic fibrosis we are currently going through the test. i have no idea what to look forward to if he is diagnosed with it. i guess we will take it one day at a time. and we will just have to deal with it if he does have it.
Posted on 10/28/2008 1:35:00 PM by Anonymous
This site is very helpful . My niece has cf she has good days and bad days she is very sick right now.
Posted on 9/30/2008 8:54:00 PM by Anonymous
Thank You... My son is 18months and I just keep looking for a cure. I am a Proud mother of Nevan Warden Whom has CF. He is cute as a button and on polmazyme, albuterol, Vitamax, Enzymes, SUPER meals and doing EXCELLENT. I have quit working and take care of him and his sisterwho doesent have CF. She is 10 and has lots of questions and I look for the answers.. Twarden79@aol.com Tasha warden This sight is very positive...
Posted on 8/18/2008 12:47:00 AM by Anonymous
The Johns Hopkins CF Center website, www.hopkinscf.org, has several educational games that teach kids about cystic fibrosis and its treatment.
Posted on 8/14/2008 3:47:00 PM by Anonymous
THIS SITE WAS VERY HELPFUL MY NEWBORN GRANDCHILD WAS JUST DIAGNOSED.
Posted on 7/10/2008 9:45:00 PM by Anonymous